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I’ve heard others talk about “having a flare” when discussing their Sjs. What do they mean and how can I prevent one?


A flare up, often referred to as a “flare”, is a sudden, severe onset of symptoms. As example, you’ve been managing well, your symptoms have lessened and having momentarily forgotten the pain and dryness, you’ve been living ‘full out’ as you used to. And then, suddenly, those angry symptoms are back!
Several points are worth keeping in mind: First, the symptoms of flares are usually very similar to the symptoms you had when your disease began. If a headache signaled the beginning of your disorder before, the recurrence of a headache may indicate the beginning of a disease flare. If a vague feeling of having flu presaged your going to the Doctor when Sis was diagnosed, and this feeling returns, it is likely to be a flare. .
And it is for this reason that you must constantly check in and know your body and how it reacts. A certain way of avoiding flares is to write a diary of symptoms whenever you feel them. Link them to whatever might have triggered them. If, for example, you worked over-long hours, or had an argument with your son’s soccer coach, write it down. In the case of the workload it will be clear that you need to discuss with your employer your need to arrange your work hours to allow for a rest and in the case of that soccer blowout, it will be clear that such activities are bad for your health.
Also, this is the time to report to your Doctor and talk about new feelings or pains that are unusual. New symptoms may not only indicate a flare, they may also herald complications of treatment.
Treating a flare with attention and care will help you have fewer of them. Step back, take care of yourself, rest more often or make inroads to arranging your work day to allow such things, and you will go a long way towards having fewer occasions of “flare-ups”.

Printed from: http://www.sjogrensforum.com/ask-the-doctor/flares/ .
© Your Name Here 2015.


  • Jeana Norman says:

    Wow, I never forget that my mouth is dry or that I feel terrible and in pain. Whoever GETS to go into remission is lucky

  • Deborah Nugent says:

    Q: I have known I have SjS for about 4 yrs. now......I was never told that SjS can cause pain!! I know about the dry eyes and mouth, n other places, I know that the Disease can cause worse case scenerio the way the glands can clog up that it could cause Lymphoma.......also the med I take for it, a side effect could be also Leflonimide could cause Lymphoma!!! I really need more info if anyone has one... THANK YOU SO MUCH!!!

    A: Yes Sjs can be associated with pain, for example neuropathies, fibromyalgia, vulvodynia, interstitial cystitis ...to name a few.

    Good place to start for info is the National Sjogren's Foundation (www.sjogrens.org). Under the Book section is the recently updated Handbook, which is a comprehensive update on ALL that can occur with Sjs.

    dr c

  • Corinne says:

    Q: Hi I just found out that I have sjogrens I all so have lupus and the lymphoma cancer now this sjo what els am I going to get ? Thanks

    A: Maybe nothing more...maybe another autoimmune disorder. Once an autoimmune process starts (loss of tolerance to self)...it is more likely that others "may" develop.

    Follow the basics: Anti-inflammatory diet, exercise, stress management. Be vigilant and informed and check with your physician's if something new and different develops.

    dr c

  • Casey says:

    I have such bad burning in my gums, lips, and throat hitch shoots into my ears. Does anyone else have this with primary Sjogren's and will it go away or is this a neuropathy?? Thank you!!

  • Andrea says:

    I was diagnosed about 5 years ago with Sjs. I was on Plaquinil and Methotrexate for almost two years. I was tired all the time and fel really horrible. I quit taking my medicine and I feel pretty good! I have a lot of problems when the weather changes. I was diagnosed with arthritis in my hands, wrists, lower back and hips. Now I am getting to the point where the pain is almost too much. Is the medication worth feeling "drugged" all the time? I'm returning to work after 7 years, any advice?

  • shon says:

    I have burnning mouth syndrome, and that's a sign I am having a flare up. It took 5 years of feeling terrible, I was diagnose 2 years ago with primary sjs, and now fibromyalgia. Sometimes I feel like I like I am having a heart attack, the body aches and the fatigue and the numbness in face always causes stress. Now I am experimenting skin discoloration on my face more stress and depression. Has anyone else experience any of what I am going through?

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